Agenda item - Motor Neurone Disease (MND) Charter

18.1    John Child told the Board that the Motor Neurone Disease (MND) Charter emphasised early diagnosis, quality of care, dignity & respect, quality of life, and support for carers. The CCG supports all the Charter’s aims.

18.2    Cllr Brown commented that MND is a devastating condition and that she welcomed the Charter, particularly in terms of the emphasis it places on carers.

18.3    Cllr Barford declared an interest in this item, since she is professionally involved in the delivery of palliative care. She welcomed the Charter.

18.4    The Chair thanked everyone from the MND Association who had attended the meeting. He told the Board that it was important that we support people with MND, especially in terms of ensuring that services respond swiftly to the speed at which MND can progress, so that there is no lag in the support that people with MND receive.

18.5    RESOLVED – that the Board agrees to adopt the MND Charter.